Useful Links
For young people with long-term illnesses and their parents. Run by Barbara & David Robinson, The Suffolk Youth and Parent Support Group for pupils with long-term illnesses was set up with the support of Suffolk LEA's Parent Partnership Initiative and is based in Ipswich.
There are monthly meetings for both young people up to the age of 25 and their parents. All the young people concerned have reduced school/college attendance or reduced capacity to work, through ill-health (in particular M.E./Chronic Fatigue Syndrome).
The role of the group includes: reducing isolation of young people and parents, sharing problems/strengths, accessing and sharing information, linking to national self-help organisations.
AYME (pronounced ‘aim’) was founded in 1995 and is now the largest national charity for children and young people with ME aged 5 to 25. We provide support, advice and information to young people with ME and their families and friends. We help break the isolation that children and young people with ME feel, and make sure their voice is heard at all levels. We have won awards for our services to members and our volunteering opportunities.
"The Tymes Trust is a respected national voluntary charity offering a friendly, personalised service for children and young people with ME and their families. It is committed to providing continued and expanding high quality services, whilst maintaining a long established personal approach, specialising in providing practical solutions to problems."
Prime Minister Tony Blair.
Action for M.E. is the UK's leading charity dedicated to improving the lives of people with M.E. We've been at the forefront of the campaign for more research, better treatments and services since 1987, and we provide information and support to people affected by M.E.
The ME Association (The MEA), founded in 1976, fulfils its strategic aims by funding and supporting research and providing information and support, education and training. This service benefits people with ME (myalgic encephalopathy)/CFS (chronic fatigue syndrome) and PVFS (post viral fatigue syndrome), professionals and all others interested in the illness.
Joint DfES and DOH statutory guidelines for sick children: Access to Education for Children and Young People with Medical Needs.
A registered charity serving sufferers (family and friends), including a new appeal for people under the age of 30.
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